Event Date: Wednesday, August 22
Event Time: 6pm Pacific (9pm Eastern)
Speaker: Caren Haines
Description:
Up to 50% of all children have undiagnosed seizure disorders, to a great extent because they are difficult to diagnose and due to a lack of awareness and understanding. Caren Haines, with renowned behavioral child neurologist Nancy Minshew, MD, is determined to change that. At age two, author Caren Haines’ son was diagnosed with autism. By the time he was 12, his diagnosis didn’t account for his uncontrollable aggression, the acrid smells that lingered in his mind and the odd voices that screamed at him from inside his head. By the time he was 18, his out-of-control behavior mirrored a mood disorder with psychotic features. Silently Seizing begins with a close-up look at this family’s journey and examines a disorder that cannot always be identified in a clinical setting. Intersecting at two medical sub-specialties, neurology and psychiatry, the child who has autism and partial seizures is at a serious disadvantage. By inadvertently allowing children’s brains to “silently seize,” we are robbing children of their ability to function normally. When treated early with anti-seizure medications, many children show amazing gains in expressive language and comprehension. Many begin to speak and learn as many troubling behaviors begin to disappear. Even more important, many children lose their diagnosis of autism.
Bio of Caren Haines
Caren Haines is the mother of a 24-year-old son diagnosed with autism as a young child. As a registered nurse, Caren relied upon her nurse’s training to assist her in deciphering the origins of many of her son’s perplexing behaviors. Based on knowledge gained from years of intensive research she compiled for this book; as well as, information provided by top researchers in the field of autism, Caren is helping families become free from the debilitating symptoms of silent seizures and psychosis. She is also co-author of a children’s book, Georgie, The Flying Dog, which explores the concept of unconditional love and acceptance of our differences.
4 replies on “Silently Seizing”
My son, 29, diagnosed as PDD/NOS, continues to manage his seizure by taking the carbamazepine at 200 milligrams 2x daily. His sensory issues continue to obstruct attending physicians’ assessment of his vision, basic assessments of his temperature, blood, etc. All assessments of his total system would require that he be knocked out by some anesthesia because he would always resist any touch by the medical professionals. After all that had he had to be put through when he was a young child, the strapping, constraints so all tests can be performed, I’m sure these were all traumautic for him and still such experiences were vividly remembered, as he was diagnosed that he has photographic memmory, especially if needles poking him were painful.
I am very concerned that he may not wake up under some anesthetic treatment; and so I need to hear from other parents or physicians on how to deal with this problem. My son would need to be trained and understood by a very patient and knowledgable professional of the different gifts autistic individuals have.
Thank you for hearing me out.
I am interested in listening to the webinar, but I live in Jeddah, Saudi Arabia which means there is time difference 7-8 hours USA Eastern rime. We are 7 hours ahead of your time. The webinar start late night/Early morning Please advise if I can listen to a recording at a more convenient time.
Thanks for your interest and its not a problem to hear a replay of the webinar. The webinar can be replayed up to 2 days after it first airs. Just go to https://www.momsfightingautism.com/conference. This makes it available to those who are unable to make it.
Would you have a neurologist exam for silent seizures?